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Copyright 2010, All Rights Reserved, EDS Network C.A.R.E.S., Inc.
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web site by ~ Lynn Sanders
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This page was last updated: July 26, 2010
A Genetic Connective Tissue Disorder
Mission Statement
Thank you, Debbie Vaughan for making this outstanding video ! Thank you also goes to Drew East for writing & singing our beautiful EDS song that played on Debbie's video.. We appreciate both of your time & talent that went into these projects.
Also, if you would like to buy Drew East's first CD which also includes our EDS song "Save All The Rest" and many other great songs, His CD is for sale in our EDS Network CARES store....He is also donating $2.00 for each CD you buy and donating the money for EDS research. Thank you, Drew!
EDS Network Cares is a non-profit organization established
and driven by EDS patients and family members who share a belief in, and a passion for research and education. This all-volunteer network is led by devoted volunteers whose primary goal is to make a difference in the lives of people who are suffering each and every day from Ehlers-Danlos Syndrome.
Our mission is to help improve the quality of life for people who have Ehlers-Danlos Syndrome, through research, education and support.
We believe..........
- By supporting research, effective management techniques will be developed and ultimately, a cure will be found.
- Through support, we meet the needs of those who deserve personal attention in crisis and in grief
- Through education and advocacy, we promote awareness, understanding and ensure access to treatment
