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Copyright 2009, All Rights Reserved, EDS Network C.A.R.E.S., Inc.

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Lynn Sanders-Founder

whatever support that is necessary whether it is to individuals, family members or to those organizations that she is affiliated with. 

Lynn's family has seen her thru numerous surgeries and hospitalizations and are extremely understanding of the time elements involving her volunteer work.

In the rare moments that Lynn is not volunteering she manages to find time for her love of photography and GEO caching.

Lynn's volunteer experience includes but is not limited to:

Ehlers Danlos National Foundation

• 1995
  Started first local Ehlers-Danlos Syndrome National Branch
  

• 2000-2002
  Branch Representative on the Board of Directors
  

• 2000
  By-Law Committee
  

• 2000
  Outstanding Achievement Award
  Branch of the Year Award
  

• 2001
  EDNF Conference planner
  Host to EDNF Conference in Milwaukee, WI
  

• 2001-2005
  Emergency Room, Genetics, Rheumatology and Dermatology
  

Physicians Medical Conferences-EDNF Awareness Booth

• 2002-2005
  EDNF Representative on the Skin Coalition
  

• 2002-2005
  EDNF Representative on Capitol Hill, Washington D.C.
  

• 2003-2005
  EDNF Executive Board of Director
  

• 2004
  EDNF Project Manager
  "All Types of Ehlers-Danlos Syndrome" CD
  

• 2005
  EDNF Shining Star Award
  "All Types of Ehlers-Danlos Syndrome" CD
  

Ehlers Danlos National Foundation-Milwaukee Branch

• 1995
  Founder of the Milwaukee EDNF Branch
  (one of the first chartered EDNF Branches)
  

• 1995-2004
  Milwaukee EDNF Branch President
  

• 2000
  EDNF Outstanding Achievement Award
  Branch of the Year Award
  

• 2005
  Facilitated the signing of "Ehlers-Danlos Syndrome Month" (month of November) in the State of WIsconsin with Wisconsin's Governor Doyle
  

Arthritis Foundation

• 2001-Present
  Advocate and photographer for all major fundraising events
  

• 2005-Present
  Advocate District #1
  Captain for the WI Arthritis Foundation
  

• 2006-2007
  Advocate at Arthritis Advocacy Summit & Kids Summit in
  Washington, D.C.
  

• 2006-Present
  Chairman of the WI Arthritis Advocate Committee
  

• 2007
  Distinguished Service Award from the WI Arthritis Chapter
  

• 2007
  Patient Advocacy Award from The American Pain Foundation.  (Passionate & Outstanding Advocate for People with Pain)
  

Ehlers-Danlos Syndrome Network C.A.R.E.S. INC.

• 2006
  Formed 501©3 Non-Profit Foundation for
  Ehlers-Danlos Syndrome;
  Ehlers-Danlos Syndrome Network C.A.R.E.S. INC.
  

• 2006-Present
  One of three directors of EDS Network C.A.R.E.S. Inc.
  

• 2006-Present
  Maintain EDS Network C.A.R.E.S. Inc. website
  

American Pain Foundation

• 2007
  Awarded the American Pain Foundation’s first
  Patient Advocate Award.  Acceptance trip to
  Baltimore for 10 year Anniversary Gala for award
  acceptance
  

web site by ~ Lynn Sanders

Lynn has been married to her husband       Dave for the past 30 years and together

they have three very supportive, adult         children; Jeremy, Justin and Jessica.            Jeremy and his sweet wife, Heather have     blessed them with their first grandson,

Mason James, the joy of their lives!

For Lynn, her family's love and support have made it possible for her to do the ceaseless hours of volunteer work that requires more time than she is willing to admit.  She is always available to lend