C

Copyright 2009, All Rights Reserved, EDS Network C.A.R.E.S., Inc.

hildren

A

R

E

S

dults

esearch

ducation

upport

~

~

~

~

Peggy Snuggs - Board of Directors

web site by ~ Lynn Sanders

        

Peggy Rocha Snuggs is an educator in Tampa, Florida

and the mother of an E.D.S. child. Her passion has

always centered on meeting the needs of children,

in and out of the classroom.   Her spare time is spent

enjoying family, reading, and amateur photography.

                  Volunteer Activities include:  

• Founder and President of Tampa Bay Branch for Ehlers-Danlos Foundation
  

• Organized and hosted State Learning Weekend for Ehlers- Danlos Syndrome at Shriner’s Hospital in Tampa.
  

     

• Served on Parent’s Board at Shriner’s Hospital in Tamp
  

• Served on Parent’s Newspaper at Shriner’s Hospital
  

• Created EDS information section at Shriner’s Hospital Medical Library in Tampa
  

• Organized and hosted 2 golf tournaments to benefit Ehlers-Danlos Foundation
  

• Organized and hosted 2 athletic fund-raisers to benefit Ehlers-Danlos Foundation
  

• Organized and hosted National Ehlers-Danlos Learning Conference in 1998.
  

• Served on the by-laws committee for National Foundation
  

        

National Foundation

     

Board of Directors 1998-2005

     

Represented National Foundation at Orthopedic Conference in Orlando, Florida

Branch/Group Director

    

• Organized first Representative Sessions at National Conferences
  

• Created Tiered Branch/Group Affiliations
  

     

• Co-authored first comprehensive Branch/Support Group Handbook
  

• Served on committee to revise Branch/Group By-laws
  

• Recipient of 2004 Outstanding Volunteer Award
  

• Director of Children’s Programs
  

• Created and implemented Children’s learning Conference Programs and activities
  

    

• Author of  An Educator’s Guide: Meeting The Needs of The Ehlers-Danlos Child and A Parents Guide: Helping Your Child Succeed at School - Author of locally published articles
  

EDSNETWORK C.A.R.E.S.

      

Board of Directors

• Authored: “ Five Frequently Asked Questions About E.D.S. and School” and “The Ultimate Camping Experience for the Ehlers-Danlos Child”
  

This page was last updated: June 28, 2010

A Genetic Connective Tissue Disorder